Behind the Mystery: Rare and Genetic Diseases Serves as Media Sponsor for World Orphan Drug Congress

On April 20 and April 21, 2017, The Balancing Act and its and recurring segment Behind the Mystery: Rare & Genetic served as exclusive media sponsors at the World Orphan Drug Congress USA 2017 in Washington, D.C.

Behind the Mystery worked closely with the Congress’s organizer, global events company Terrapinn, Inc., to spread awareness about breakthroughs in rare disease treatments and advancements in orphan drugs.

Behind the Mystery had its own booth at the event in The Balancing Act Media Zone, where the series conducted interviews and meetings with a variety of high-profile speakers and attendees of the Orphan Drug Congress.

Behind the Mystery: Rare & Genetic, in its fifth season of programming, highlights the rare and orphan disease community on The Balancing Act. A Behind the Mystery segment filmed on-location from the Orphan Drug Congress will be featured during the May 22 episode of The Balancing Act; the segment will re-air on May 29.

The World Orphan Drug Congress USA 2017 brought together more than 1,000 attendees and 190 respected speakers from the pharmaceutical industry, biotech, payers, patient groups, academics and government bodies to educate and inspire those affected by rare diseases.

Since its inception seven years ago, World Orphan Drug Congress USA has evolved from a small conference focused exclusively on the U.S. to an internationally renowned event, with global industry leaders joining to discuss the latest trends in orphan drugs and rare disease treatment.

Orphan diseases are defined as conditions that affect less than 200,000 people nationwide, a collection of more than 7,000 rare diseases that include cystic fibrosis, Hunter syndrome and ATTR Amyloidosis.

Those suffering from rare diseases experience a broad range of problems, including difficulty in obtaining an accurate diagnosis, limited treatment options, difficulty finding doctors or treatment centers with experience treating a particular disease, exorbitant treatment costs and a general feeling of being abandoned or “orphaned” by the healthcare system.

To learn more about the World Orphan Drug Congress USA 2017, please visit http://www.terrapinn.com/conference/world-orphan-drug-congress-usa. To discover more about the upcoming segment and past Behind the Mystery segments, please visit http://www.thebalancingact.com/rare and http://www.accesshealth.tv.

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